WHAT IS HEMOPHILIA

Hemophilia is a rare inherited bleeding disorder. It is not permanently curable but treatable and manageable through careful medication and nursing. PWHs suffer from unexpected bleeding for days.

WHAT HAPPENS WHEN AN INJURY OCCURS

When a capillary is injured, blood leaks out. The capillary tightens up to slow down the bleeding. Then blood platelets form a plug to close the hole formed in the wall of the capillary. This is followed by a cascade action of not less than thirteen clotting factors (named using Roman Numerals) in blood plasma which give rise to a clot formed of fibrin over the plug. This clot makes the plug stronger and bleeding is arrested.

  • A call for help from a child or person with hemophilia (PWH) or with any other bleeding disorder may come to any of us.
  • Any one of us may meet a person with hemophilia during a journey.
  • We may have a class mate, a colleague or a neighbor with he mophilia or any other bleeding disorder.
  • So it is our moral obligation to be aware of hemophilia and other bleeding disorders.